Specialist dementia support for the LGBTQ+ community

Why is it so important to have a dedicated service for the LGBTQ+ community?  

Members of the LGBTQ+ community face many challenges and obstacles, particularly in accessing health care services. This can lead to poor health outcomes and people avoiding accessing timely support due to fear of judgement or discrimination.  

Having this service in place will ensure inclusivity remains at the core of the care and support we provide. It will reassure members of the community that they can access support from Dementia UK without fear of judgement, creating a safe space to share concerns and seek help with issues relating to dementia.   

What are some of the challenges experienced by the LGBTQ+ community? 

Every day, members of the LGBTQ+ community face challenges such as:  

• homophobia, prejudice, discrimination and judgement  
• a lack of specialised support services to meet their specific needs  
• lack of available resources  
• unequal treatment  
• inappropriate curiosity  
• lack of recognition of ‘families of choice’ and assumptions regarding relationships   
• increased prevalence of depression, high alcohol consumption and social isolation leading to poorer health outcomes 

Ways we can all support the LGBTQ+ community:

• Aim to become LGBTQ+ aware and promote awareness for the people around you 
• Become familiar with available support services to signpost those within the LGBTQ+ community too   
• Be aware that sexuality or gender identity may fluctuate in people with dementia. For example, a person with memory issues may not remember that they have come out as LGBTQ+ or that they have transitioned to a gender different from their gender assigned at birth. This could cause anxiety about family, friends or professionals finding out – when they actually already know  
• Remain mindful that a person with reduced memory may unintentionally disclose their gender identity or sexuality where they have chosen not to before – which could also have implications for their partner  
• When speaking to health and social care professionals, disclose only what you feel comfortable with. Informing them of the person’s sexuality and gender identity may help the professional provide person-centred care, but there is no obligation to do so 
• Consider language used when supporting individuals who identify as LGBTQ+. Aim to use open questions such as, “Who are you closest to?” and avoid making assumptions about a person’s gender identity, sexual orientation or relationships  
• Support the person with dementia as they present/identify at that particular time  
• Be aware of the person’s life experiences. Reminiscence therapy is beneficial for many people with dementia, but certain memories might trigger past trauma caused by discrimination or prejudice 
• Compile a record of important information about the person with dementia, such as a life story book, which could include details of their sexuality or gender identity. This can be given to professionals who are involved in their care, such as hospital or care home staff  
• Be mindful of ‘families of choice’: close friends who have adopted a larger support role because of a lack of acceptance from the person’s family of origin 
• Do report any prejudice or discrimination from professionals – this could lead to positive changes in how they support people. All health and care services must have a complaints policy explaining the steps to follow  

Dementia UK support for LGBTQ+ people living with dementia  

Currently, clinic appointments with the Consultant Admiral Nurse for the LGBTQ+ Community are available every Tuesday between 10am and 4pm. If you are unable to attend an appointment on the available clinic day, please call our  Helpline  on 0800 888 6678 (Monday-Friday 9am-9pm, Saturday and Sunday 9am-5pm) or email helpline@dementiauk.org to discuss an alternative day.

If you prefer, you can book a phone or video appointment with an Admiral Nurse.

Other sources of support

• Age UK directory of LGBTQ+ support groups for older people
• LGBT Foundation: the charity for LGBTQ+ health and wellbeing
• LGBTQ Dementia Advisory Group: a network of people supporting members of the LGBTQ+ community with dementia
• Opening Doors: online support groups for LGBTQ+ people with dementia and carers
• Rainbow Call Companions: telephone befriending for LGBTQ+ people aged over 75
• Speak out for dementia: an online peer support group for LGBTQ+ people living with dementia