Personal stories

Read personal stories from people living with a diagnosis, their family members and friends – as well as our dementia specialist Admiral Nurses.

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Let’s talk about guilt – Lizzie’s experience

Lizzie talks about the guilt she felt caring from a distance for her dad, Rob, who was diagnosed with frontotemporal...

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Penny talks about the guilt she has felt surrounding her mum's move into residential care.

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Jan shares the challenges she faced when caring for her parents with dementia, and why she's leaving a gift in...

LGBTQ+ Dementia Advisory Group member Dáithí on the importance of using inclusive language and having a person-centred approach to care.

Amy shares how she, her younger sister Chloe, and their dad Rob cared for her mum who was diagnosed with...

Elizabeth Perry started her social enterprise, This is Dementia, to tackle public stigma around her dad’s condition. Her mom explains...

Jennifer – diagnosed with young onset Alzheimer’s disease aged 63 – talks about coping strategies in order to maintain her independence.

Martin, living with posterior cortical atrophy, is passionate about younger people receiving an early dementia diagnosis.

Peter was diagnosed with young onset Alzheimer’s disease in early 2015 aged 50.

Tracey – diagnosed with posterior cortical atrophy aged 45 – lives alone and is determined to remain positive and active.

Will shares the impact his mother's diagnosis of dementia had on him and his family.

Jessica underwent genetic testing to see if she has the same gene as her dad, diagnosed with familial Alzheimer's disease.

Deb has written two books about her friend Peter and his young onset dementia.

Catherine shares how she supported her best friend after her husband was diagnosed with young onset dementia.