“Navigating the dementia care system pushed me to breaking point” – Chris’s story
Over the span of a decade, Chris cared for his parents, who both had dementia. He shares his story to highlight the systemic flaws carers face.
Let’s urge the new Government to transform dementia care
Dementia has no cure, and it doesn’t just affect people with the diagnosis – too often, the whole family is left feeling exhausted, overwhelmed and alone because our health and social care systems are inadequate.
With enough political will, dementia care can and must be fixed. Now is the time for action.
We are calling on the new Government to lead the way in transforming dementia care so that everyone gets the specialist support they need, when they need it.
One in two of us will be affected by dementia in our lifetime – whether by caring for someone with the diagnosis, developing it ourselves, or both.
Yet our health and social care services are disjointed, difficult to access and inadequate for people with dementia. The impact of this will only make the situation worse.
Too many people with dementia and their carers are missing out on a vital annual health check with their GP.
This is twice as long as it takes for older people to get a dementia diagnosis.
This lack of specialist dementia knowledge is resulting in inadequate hospital care.
When people get the right support at the right time, it can be life-changing.
We need the new Government to lead the way in transforming dementia care by:
Read the Dementia UK full manifesto
Read the shorter executive summary
We’re also partnering with leading charities to demand improvements for everyone affected by dementia across the UK. Read more about our dementia coalition.
Over the span of a decade, Chris cared for his parents, who both had dementia. He shares his story to highlight the systemic flaws carers face.
Rachel experienced challenge after challenge when applying for NHS continuing healthcare funding for her dad.
Kerry shares her experience of caring for her husband, Charles, and the difficulty they faced trying to find specialist support.