I still cherish every moment I have with Jan – Bob’s story
Bob, who has been married to Jan for 62 years, reflects on their beautiful relationship in spite of a heartbreaking journey with dementia.
Around 120,000 people with dementia in the UK live alone. A person in the early stages of dementia may be able to live alone and completely independently for some time, especially with support from family and friends.
However, as their symptoms progress, it may become harder for the person to manage on their own. It is natural to be concerned about their ability to cope, but with adaptations and support, they may be able to live alone for longer.
Technology like a mobile phone, tablet or smart device (eg Alexa) can be very helpful for people with dementia who live alone. It can be used:
Assistive technology and safety devices can also be useful – for example fall alarms, wearable GPS tracker devices or tracking apps, and video doorbells.
These can be reassuring for family members, but always respect the person’s right to privacy and consult them before installing any form of monitoring device.
Being well organised with a simple daily and weekly routine can help the person manage at home alone. This could include:
It is important for the person with dementia to continue their usual social activities, with adaptations if necessary. This will help them maintain their self-esteem and connection with others – especially if they tell friends about their diagnosis so they can offer support, for example by driving them to activities.
Social support could come from:
If the person with dementia drives, they are legally required to notify the DVLA and their vehicle insurer of their diagnosis. They will not necessarily have to stop driving, but they may have to reapply for their licence or take a driving assessment.
From time to time, suggest that the person takes you for a short drive so you can look out for any issues. You should also check their car for new dents or scratches that might indicate they are having difficulty driving.
If you have any concerns, talk to the person about your worries. They may be aware that driving is becoming more difficult and be willing to stop.
If the person does have to – or choose to – stop driving, you can support them to find alternative transport such as buses and taxis so they can continue with their regular activities. If they need to attend medical appointments, some hospitals have volunteer drivers who can provide transport.
If possible, spend some time with the person in their home to check for any safety issues.
Please see Sources of support below for our information on making the home safe and comfortable for a person with dementia.
People with dementia often have difficulty managing their finances – and missing payments like rent/mortgage and bills may impact their ability to remain in their home. They may also be more vulnerable to scams.
It may be helpful to support the person with their finances. For example, you could:
When you visit the person with dementia, take time to review how they are coping on their own. It is important that the person can be honest about how they are managing and ask for help if they need it, so make sure you ask if they are finding anything challenging. You can also ask local family and friends if they have concerns.
Bear in mind that people with dementia can have good days and bad days, so their ability to cope with everyday living may fluctuate.
If you see the person struggling with a task like cooking a meal or using the washing machine, avoid taking over. If you can step back and watch them carry out these activities, it will help them maintain their skills and independence, and over time, help you spot any changes in their abilities.
If the person seems to be neglecting their personal hygiene or their home, this could be a sign that they need some extra help.
As the person’s dementia progresses, they may need more help at home, for example from a professional paid carer. To establish what support they need, you can request a needs assessment through social services.
Many people with dementia who live alone are reluctant to accept extra support, so it important that they are fully included in any decisions. For example, they could be involved in deciding what they would like with help with or meeting potential carers.
You could also talk to the person about the benefits of getting support – such as relieving them of tasks they find difficult; freeing up time for other activities they enjoy; and providing companionship.
If possible, phase in changes gradually and positively – the person may only need support for a few hours a week at first, but this can be increased as their needs grow.
There is no fixed point at which it is no longer practical or safe for a person with dementia to live alone. However, you might want to consider their ability to:
Some people with dementia may be able to remain at home long-term with increased support – for example from a family member who could move in temporarily, or a live-in carer.
In some cases, moving into an assisted living facility or retirement property can be a positive next step, helping the person retain some independence, but with easy access to support, companionship and social activities.
Some people’s needs increase to the point that they need to move from living alone to living in a care or nursing home. Please see Sources of support below for our information on choosing a care home, including care homes for people with young onset dementia (where symptoms develop under the age of 65).
Moving to a new home can be a big and challenging step, so it is a good idea to research your options in good time to avoid making decisions in an emergency. This will also allow the person to be fully involved, visiting potential properties with you and sharing their views about where they would feel most comfortable.
Many people with young onset dementia live alone. These tips may help them maintain a safe, independent lifestyle in their own home for as long as possible.
To speak to a dementia specialist Admiral Nurse about living alone or any other aspect of dementia, please call our free Helpline on 0800 888 6678 (Monday-Friday 9am-9pm; Saturday and Sunday 9am-5pm) or email helpline@dementiauk.org
To book a phone or video appointment with an Admiral Nurse, please visit dementiauk.org/book.
Dementia UK resources
Other resources
Bob, who has been married to Jan for 62 years, reflects on their beautiful relationship in spite of a heartbreaking journey with dementia.
Julie Hayden was diagnosed with dementia at just 54 years old. She's since dedicated herself to advocating for people living with dementia and elevating the voice of lived experience.
Simon, who has lived in New Zealand for two decades, discusses how he cares for his dad who has Alzheimer’s disease and lives alone in the UK.